Wednesday, February 1st 2017 is a date that’s winding the stress levels up for me!
I really don’t know the answer to be honest. I have an appointment with my GI consultant then and I suppose I feel this consultation will be a turning point for my future treatment plan, a change in direction maybe? A change in direction that is out of my control and a reduction in the options available to me.
To recap, I’m currently taking Pentasa, I’ve had a course of Salofalk enemas (which I stopped due to a pretty severe reaction) and I’m also on a four month course of Prednisolone steroids, 40mg daily reducing dose.
None of the drugs so far have provided any real relief or had any real impact, other than a few unwanted side effects! The Salofalk enemas gave me instant diarrhea, and I do mean instant. Not the desired effect I’m guessing 🙂
The Pentasa is OK now, but initially I got quite nauseous with them, guess my body is growing more tolerant to it as time goes on.
Finally, the Prednisolone, OMG ‘Roid Rage’ 🙂 When I started loading the steroids at 40mg daily I was turned in to an irritable, intolerant old arsehole. They acted like a truth serum, I just couldn’t help speaking my mind, honestly and far from tactfully in some instances!
Sleep is a luxury some nights, my chest and shoulders are getting spots like I’m still a teenager, I get cramp in my toes, fingers and calves daily too, my fingers end up looking like they’re stuffed inside an invisible tube of Pringles, with me just sitting there in pain and impersonating a dinosaur, just for my own amusement while it passes.
The one steroid induced side effect I’d been told about that I actually was looking forward too was weight gain and GUESS WHAT! Not a bloody ounce in the last seven weeks as deposited itself on my bony little body!
TYPICAL! Guess I’ll have to live with my pool cue physique then 🙂
So, I’m still getting ‘unformed’ stools with little warning of their impending escape, passing blood far too often from my battle weary poop shoot and getting bouts of sudden and severe pain, sometimes a few seconds of stabbing and gripping, sometimes a prolonged onslaught. I’m beyond tired some days and weight gain eludes me no matter how many calories I try to stuff into my face 🙂
Ah well, at least I’ve got myself prepared with a list of questions for the GI consultant! Other than that, I really don’t know what to expect and I’m dreading it for no good reason to be honest, all the prods and probes, needles and canulas I’ve had recently haven’t really bothered me or had me stressing prior to the event and this is just a chat really, a sit down and discuss session!
Perhaps I need some ‘Man Up’ pills prescribing, see if that helps, but knowing my record with side effects recently, I’d probably grow breasts!
At least I’ve still got my sense of humour, all present and correct 🙂
Thanks for reading and please add your comments below 🙂