Well, ain’t it just the way with life and even more so, it seems, with inflammatory bowel disease, that just when you start to feel up, you get a good hard slap back down again!
At my previous GI appointment in early June it appeared things had progressed in the wrong direction for me (didn’t realise I needed a map!). I already knew to be honest, but as we do, I chose to ignore it, push it into the background and just get on with life!
The rectal bleeding was still there, the pain was still there, the tiredness was ever present and my back, left elbow, left wrist and left knee are giving me grief. Welcome to the joys of IBD joint pain!
Coupled to all this are inflamed eyeballs in the early morning. Seems IBD is full of pleasant surprises 🙂
So, I’ve been back on a 40mg reducing dose of the dreaded prednisolone and the roid rage began to kick in quite early (they act like an angry truth serum), but I’ve managed to avoid the cramps in my hands and feet, just the odd onslaught in my left foot, so far so good 🙂
My consultant wanted me to start on Azathioprine asap (I’m a week into the drug as I write this) and I finally agreed, deciding that neccesity outweighed my fears and reluctance. I was hoping for less hospital appointments as time went on, but they have just increased and I’ve trudged my way up there with regular monotony on a monthly basis. It feels strange to walk in and get greeted by my name, no introduction needed these days! I wonder if they recognise my bumhole more than they do my face 🙂
As for less appointments and hospital time? I’ve now got to get a blood test every two weeks for the next three months, then thankfully I only need to get pricked once a month 🙂
That’s all for this quick catch up, I’ll post my thoughts on taking the Aza in the next post folks, I’ll be back soon, take care out there 🙂
Thanks for reading
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